I didn’t specify a topic the HCSM blog carnival this week because I wanted to see what kinds of posts I’d get. I got a huge variety, everything from patient advocacy to mobile apps.
One of the things that fascinates me most about social media is how patients are using it to find and support each other. One of the best is Marie O’Connor, who has been blogging at Journeying Beyond Breast Cancer for four years. Her post this week is on the power of patient blogs.
Twitter has become another huge channel for healthcare advocates, and one of the best known tweetchats is #bcsm (breast cancer social media). One of its moderators, Jody Schoger, wrote #BSCM, Cancer Advocacy and Education in the Virtual World for the Breast Cancer Consortium. Jody also blogs at the excellent Women with Cancer and if you don’t follow @jodyms on Twitter, you should start. Right now.
David Harlow at HealthBlawg submitted Engage With Grace, which asks us to have that all-important conversation with loved ones about how we want to die. This was the fifth year of the Engage with Grace Thanksgiving blog rally.
Disabilities advocate Patricia Anderson submitted #HCSM and Disabilities: Some Case Studies, which discusses how social media venues such as Second Life are removing barriers.
Patient advocates are also using their power to put doctors on notice. No, You Kiss My . . . , from afternoon nap society, calls out a Dr. Greenbaum for belittling a patient in an article he wrote for a rheumatology journal.
Healthcare IT researcher Tim Cook also touches on this theme with Change, really!? arguing that doctors are not losing power simply because patients are gaining it.
And doctors are embracing social media. Want to get a roomful of cardiologists’ jaws to drop? Start talking about using social media to improve outcomes, like cardiac electrophysiologist Kevin Campbell did at a recent conference.Tuberculosis is a huge public health issue in India, and Dr. Ruchi Dass explains how ecompliance is being used to control it.
Data was well represented, with Andy Oram reporting on big data from the Strata RX conference and Jason Kohn posting about the mobile healthcare revolution in the developing world.
John Goodman reported on a radical notion: cost transparency and shopping for medical care, thanks to a health-care “blue book” and MediBid, which operates on the Priceline concept. I remember when I had my post-mastectomy breast reconstruction four years ago, even my plastic surgeon had no idea what the Alloderm he used to augment my tissue cost.
Thanks to everyone who submitted blog posts this week, including Joan Justice, who curates the HealthWorks Collective site where several of these posts appeared.